There were some experimental procedures being done in several parts of the world and arrangements were made for me to visit doctors in London, Italy and Spain. All of them said the same thing; the procedure is too risky for you. It is likely that the procedure would cause you to die sooner and be completely unable to move from the neck down.

The idea of the procedure was to break the spinal cord over and put a shunt or tubing inside the center of the spine slowing the rate of erosion in the cyst....